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What is it like to have FMS/CF/ME?

A gift

Wednesday 18 November 2009

Fibro or ???

 I have been told by an osteopath that he thinks I dont have Fibro, but ME (CFS).
He insists Fibro is a very specific condition and often tagged onto patients with CFS who have muscle pain.
Anyone encountered this please...
Oh I forgot you dont like to comment do you...
How will we help each other if we all keep shtum??

Saturday 31 October 2009

Due to lack of interest.

I really might just let this go.  I dont think it is of any interest to anyone, or....
It isnt beng found.  Either way, my health being what it is, keepin one blog is hard, let alone 3.
I wanted to keep this and the migraine away from my main blog, because I don't want to be a "headache" or pain in the ass.

If anyone actually reads this, and yes I know it isn't kept up that much, but  might be if I got a bit of encouragement from time to time...IF anyone reads it and feels prompted to comment, please do.

Saturday 10 October 2009

At last a possible breakthrough. Is it a cause?

Interesting and actually making the news everywhere.

http://www.mahalo.com/what-is-xmrv-virus

Monday 31 August 2009

Pain in the neck

I get sick of my neck and jaw hurting.
It worsens with the migraine, but is pretty constant anyway.
Tried all sorts of sleeping positions,no change.

Right now I aching head to toe.
Used the Wii machine for some bowling.
I will pay for that for a few days yet.

I hate my muscles.

Monday 13 July 2009

Swine Flu

I am sick of hearing about his with the half information they give us.
I think it might be better if they told people to be worried, then they might take better hygiene precautions.

People are dying from this thing and there is a wonderful idea to have Swine Flu parities, to get it over with. That's fine for the really healthy people, but who might you pass it on to. AND do you know if you have an underlying health problem??

I am desperate not to get it. I just don't need any more migraines.
when I had the flu at Christmas i had a terrible head for days.
Also with the Fibro I might get it worse with a lowered immune system....
Again the flu pulled me down for weeks....
Will somebody please level with us all....

Friday 10 July 2009

Pain in the neck

I am so sick of this awful pain that runs down the side of my neck.
It reacts with migraine, but cant figure which is cause and which effect.
I am sure it is linked to the Fibro but no idea who to ask and what can be done.
Pain killers don't hit it, not even Triptans.....
Anyone??

Monday 15 June 2009

Twitter

I joined twitter...it is aptly named and I cant say I get much out of it.
BUT, there are a number of people on there who apparently scan the web and post all they find on a daily basis regarding Fibro etc.

Try it. I have learned a bit and a feeling up to date.