Fibro or ???

 I have been told by an osteopath that he thinks I dont have Fibro, but ME (CFS).
He insists Fibro is a very specific condition and often tagged onto patients with CFS who have muscle pain.
Anyone encountered this please...
Oh I forgot you dont like to comment do you...
How will we help each other if we all keep shtum??

Due to lack of interest.

I really might just let this go.  I dont think it is of any interest to anyone, or....
It isnt beng found.  Either way, my health being what it is, keepin one blog is hard, let alone 3.
I wanted to keep this and the migraine away from my main blog, because I don't want to be a "headache" or pain in the ass.

If anyone actually reads this, and yes I know it isn't kept up that much, but  might be if I got a bit of encouragement from time to time...IF anyone reads it and feels prompted to comment, please do.

At last a possible breakthrough. Is it a cause?

Interesting and actually making the news everywhere.

http://www.mahalo.com/what-is-xmrv-virus

Pain in the neck

I get sick of my neck and jaw hurting.
It worsens with the migraine, but is pretty constant anyway.
Tried all sorts of sleeping positions,no change.

Right now I aching head to toe.
Used the Wii machine for some bowling.
I will pay for that for a few days yet.

I hate my muscles.

Swine Flu

I am sick of hearing about his with the half information they give us.
I think it might be better if they told people to be worried, then they might take better hygiene precautions.

People are dying from this thing and there is a wonderful idea to have Swine Flu parities, to get it over with. That's fine for the really healthy people, but who might you pass it on to. AND do you know if you have an underlying health problem??

I am desperate not to get it. I just don't need any more migraines.
when I had the flu at Christmas i had a terrible head for days.
Also with the Fibro I might get it worse with a lowered immune system....
Again the flu pulled me down for weeks....
Will somebody please level with us all....

Pain in the neck

I am so sick of this awful pain that runs down the side of my neck.
It reacts with migraine, but cant figure which is cause and which effect.
I am sure it is linked to the Fibro but no idea who to ask and what can be done.
Pain killers don't hit it, not even Triptans.....
Anyone??

Twitter

I joined twitter...it is aptly named and I cant say I get much out of it.
BUT, there are a number of people on there who apparently scan the web and post all they find on a daily basis regarding Fibro etc.

Try it. I have learned a bit and a feeling up to date.

At last a real life person. (as opposed to virtual)

Yesterday totally by accident, (or was it synchronicity?), I met the first living person who lives anywhere near me who also has Fibro.
We met by chance when i offered a lawn mower on the Freecycle site.
We had a good chat on the phone and it was good to speak to someone who actually understands what this lousy illness is like.

She has her own forum which can be found at www.fibromyalgiachatandfun.freeforums.org.
We need to give this waste of living time a better/higher profile.
I think there might be safety in numbers.

Maybe I'll see you there...

CFS/ME.

Well I thought it was about time to make another posting on the blog no one reads.
I wondered whether people just don't have any of these illnesses.
Well I know that isn't true.
So I guess my blog is just not interesting enough.
Well it would be more interesting if I felt anyone actually read it.
So here's the deal.
Read it and post and tel me what we should be talking about.
And lets do it.
These illnesses are the pits and there is not enough creedence given nor enough help or understanding.]
the more we all band together the more difference it might make.
If you have a blog on this too lets link.
Lets exchange info, help each other.
Here endeth the lesson.

PLEASE say something.

I went to a migraine day and found even more people who have migraine. and IBS, AND
Fibro/ME/CFS.
The more comments I can get from people who can relate to this crossover the better.
I do know people read this blog, but no one comments.
I don't understand why, I don't write it often because of that, but would love to do more to help us all.
There is a connection between these conditions, I and the people I met are sure of it.
Let's pull together and see if we can help the "experts" and push for more research.
Its the Neuros we need I think....
Thanks.

New friend.

I am so pleased that I have found a new friend who has Fibro and migraines.
Well obviously I am not pleased for her, but its good to not feel so alone.
Okay she is 3000 miles away, but she likes dogs and is very friendly.
I'll take that.

So who is next to join us......

At last

At last a comment from other poor soul who has Fibro and migraines, especially with these awful Trigger Points.
Perhaps we can help each other, that's what I am about, finding a way out of this.
If there is anyone else too shy to comment. Please do, at least now you wont be the first.

Trigger Points

Before I give up on this totally, wanted to ask if anyone hads any experience or information regarding Trigger Points. I think mine are causing some of my migraines.
If you do, please post, thanks.

IBS. Migraine

OK, it does seem no one reads this, so it might as well go.
Before I pull it, one more try to see if anyone has the same problem as me.
Does anyone have IBS and/or Migraine to go with their Fibro (CFS/ME, its all the same)
I would love to know. I cant decide if my migraines are a cause or effect.
And I had IBS for years before either the Migraine, and later the FMS hit.
Last chance....
Thanks.

Closing down

Given no one reads this as far as I can tell, and I don't always feel like talking to myself, I think I will shut this down.
I had hoped I might meet some other people encumbered with this crappy illness, but it seems not.
So unless anyone begs me....form a line to the right....to keep this blog.
In a few days, it goes.

Back again

I cant believe I have pulled my back again. this is twice in as many weeks.
this time it seems to be worse, and what was I doing.....nothing.
this also follows pulling my neck, reading the paper....
this is bizarre not to mention painful.

I guess I have FMS to thank for this, but given I have no medical advice/assistance, how would i know?

Like having brittle bones of the muscles.....

No weight loss.

I am truly disappointed. We got this Wii machine and although I cant use it every day I have been trying to use it as much as I can.
Everyone has lost weight and lowered BMI except me.!!!!!!
Not an ounce.
Now I wasn't expecting a huge change, but after6 weeks and this providing at the very least more exercise than I was getting......
I don't understand it.
It isnt what I eat, and everyone said "you need more exercise".

Seems that isn't it either.....
Why cant I shift this blob around my middle....

Reverse Therapy/Mickel Therapy

These are the wonder treatments for Fibro ME etc.
They work on the presumption that the Hypothalamus is responsible for all our problems. Anyone tried these things....i have and am interested to hear from anyone else who has. So assuming anyone ever reads this blog.....if you have used it, or are just curious, please leave a message after the tone.

Not much to say

FMS wise I havent been doing too badly. Pulled my neck somehow...again.
the humidity is making my muscles a bit less than happy, but all in all....

Writing a Blog can be quite cathartic, but it is a shame more people dont feel inclined to comment. I figure if it isnt a private blog then its open to comments.
I know a Blog on FMS isnt going to attract much passing trade, but it would still be nice to find out who if anyone apart from my family read this.
Don't be shy.

Wii

My daughters got this Wii machine and it tests how "old" you are in fitness terms....when I first did it I was 80. Well wasn't that a turn on???
I like the bowling, I used to love to bowl, but hitting homers is tough on my arm muscles. Anyway one of my better days i got down to 27.....fantastic.
Beat my own kids....but now I am 45. Seems to be how good my muscles are; not a lot to do with actual fitness. I just wish it would help me lose some weight.
We are waiting for the Wii fit which Nintendo seem to be hiding somewhere or holding back to tease us. That might be fun, ....or not!!