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What is it like to have FMS/CF/ME?

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Thursday, 2 April 2009

CFS/ME.

Well I thought it was about time to make another posting on the blog no one reads.
I wondered whether people just don't have any of these illnesses.
Well I know that isn't true.
So I guess my blog is just not interesting enough.
Well it would be more interesting if I felt anyone actually read it.
So here's the deal.
Read it and post and tel me what we should be talking about.
And lets do it.
These illnesses are the pits and there is not enough creedence given nor enough help or understanding.]
the more we all band together the more difference it might make.
If you have a blog on this too lets link.
Lets exchange info, help each other.
Here endeth the lesson.

Wednesday, 25 February 2009

PLEASE say something.

I went to a migraine day and found even more people who have migraine. and IBS, AND
Fibro/ME/CFS.
The more comments I can get from people who can relate to this crossover the better.
I do know people read this blog, but no one comments.
I don't understand why, I don't write it often because of that, but would love to do more to help us all.
There is a connection between these conditions, I and the people I met are sure of it.
Let's pull together and see if we can help the "experts" and push for more research.
Its the Neuros we need I think....
Thanks.

Tuesday, 11 November 2008

New friend.

I am so pleased that I have found a new friend who has Fibro and migraines.
Well obviously I am not pleased for her, but its good to not feel so alone.
Okay she is 3000 miles away, but she likes dogs and is very friendly.
I'll take that.

So who is next to join us......

Friday, 7 November 2008

At last

At last a comment from other poor soul who has Fibro and migraines, especially with these awful Trigger Points.
Perhaps we can help each other, that's what I am about, finding a way out of this.
If there is anyone else too shy to comment. Please do, at least now you wont be the first.

Monday, 22 September 2008

Trigger Points



Before I give up on this totally, wanted to ask if anyone hads any experience or information regarding Trigger Points. I think mine are causing some of my migraines.
If you do, please post, thanks.

Friday, 12 September 2008

IBS. Migraine

OK, it does seem no one reads this, so it might as well go.
Before I pull it, one more try to see if anyone has the same problem as me.
Does anyone have IBS and/or Migraine to go with their Fibro (CFS/ME, its all the same)
I would love to know. I cant decide if my migraines are a cause or effect.
And I had IBS for years before either the Migraine, and later the FMS hit.
Last chance....
Thanks.

Wednesday, 3 September 2008

Closing down

Given no one reads this as far as I can tell, and I don't always feel like talking to myself, I think I will shut this down.
I had hoped I might meet some other people encumbered with this crappy illness, but it seems not.
So unless anyone begs me....form a line to the right....to keep this blog.
In a few days, it goes.